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| www.smw.ch |
| Gisela Michel, von der Weid NX, Zwahlen M, Adam M, Rebholz CE, Kuehni CE. |
Swiss Med Wkly 20 07;137:502–509
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| Original article Peer reviewed article |
| Summary Questions under study: Childhood cancer is a rare but severe disease. Therefore central registration of all cases is essential for surveillance and management. This paper describes the methodology and basic results of the Swiss Childhood Cancer Registry (SCCR). Methods: The SCCR was established in 1976, originally as a national hospital-based registry of childhood malignancies. All 9 paediatric oncology-haematology clinics in Switzerland provide baseline and follow-up information on all children diagnosed with cancer. These data are registered centrally and diagnoses are coded according to the International Classification of Childhood Cancer. Results: From 2001-2005, 887 cases of childhood cancer in Swiss residents under the age of 15 years were registered in the SCCR. Of these, 281 (31.7%) were leukaemias, 223 (24.0%) were CNS tumours, and 116 (13.1%) were lymphomas. The age-standardised annual incidence per 1 Million person-years (age below 15 years; world standardisation) was 154.0 (95% CI 143.7–164.3; N = 887). The incidence was higher for boys (170.2, 155.0–185.4; N = 501) than for girls (136.9, 123.0-150.8; N = 386). Conclusion: The close collaboration between all paediatric oncologists-haematologists in Switzerland and a university department allowed the creation of a national population-based cancer registry with detailed clinical information. The SCCR produces cancer type specific incidence and survival estimates and allows the development of nested research projects on childhood cancer aetiology, management and outcome, both on a national and on an international level. |
Swiss Childhood Cancer Registry, Institute of Social and Preventive Medicine, Research Group on Child and Adolescent Health, University of Berne, Berne, Switzerland Paediatric Haematology-Oncology Unit, Centre Hospitalier Universitaire Vaudois, Service de Pédiatrie, Lausanne-CHUV |
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Copyright © 2007 EMH Swiss Medical Publishers Ltd. |
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